“You wake up every morning to fight the same demons that left you so tired the night before, and that, my love, is bravery.” – unknown
As we all know it’s hard enough living with multiple sclerosis (MS) on a day-to-day basis when dealing with the symptoms of this disease… but then we have to make all these choices on what medication we want to take (more than a dozen disease-modifying therapies, or DMT's, are available) and what kind of diet …
Continue reading Making Treatment Decisions with Your Health Care Team
If you are anything like me, you use your phone or tablet for a lot of things to manage your daily life and to stay in communication with others. My usual routine also often includes doing a quick search for certain topics on multiple sclerosis (MS), and adding calendar reminders for doctor’s appointments and other …
Recently I came in to contact with someone from #MuckFestMS. I had heard about it before, and it looked like a lot of fun, but I was always telling myself I wouldn’t be able to complete it. It’s a 5K-obstacle course/mud run that raises money for MS. I decided to ask more about it and …
Recently, you have probably seen posts about a MS Blood Test Study in my blog as well as on Social Media, if you missed the original blog post, click here. I’m doing a follow up article talking about my experience participating in the EMPOWER study and just how easy it was to help make a …
Are you interested in helping advance research for MS but don’t know where to start? You’re not alone. Taking part in a research study for MS can seem overwhelming, but it doesn’t have to be. A new at-home study called EMPOWER (Evaluating Multiple Sclerosis Patients ShOWing A GEnomic Signature of Therapy Response) is seeking volunteers …
Continue reading Join an MS study from the comfort of home. Receive $50 for your time.
#KickMS - What I CAN DO while having Multiple Sclerosis.
When I was first diagnosed, I didn’t really know what MS was, what caused it… I didn’t know that there wasn’t a cure available. It seemed the more and more I learned after getting diagnosed, the more I didn’t want to believe it all. I’ve come to realize, and explain to others that get diagnosed …
I’ve always been that person that believes that actions speak louder than words. I’m not sure if that’s how everyone feels, but it’s just a personal attribute I guess. I wanted to share just some experiences I’ve had in the past, both good and bad, just to get it out there and get it off …
You know how frustrating it is, when someone comes to you that does not have Multiple Sclerosis, or any other chronic illness, but tries to compare what he or she is going through to what we are going through. It’s annoying, at least for me. I know that I’ve touched base on this a few …
Have you ever had someone look at you, and not believe that you have Multiple Sclerosis, or something similar? Have you ever had to show proof that you are, in fact, considered disabled, due to Multiple Sclerosis? I’m not talking about showing proof where it’s required, but just in your local community, with people you …
Ashley's Life with Multiple Sclerosis 